Here's What We Know About Milly Shapiro and Her Medical Condition · (2024)

Milly Shapiro is an American actress and singer best known for her role asCharlie Graham in the horror movie Hereditary. She has a rare genetic condition called Cleidocranial dysplasia, which affects the formation of the teeth and other bones such as collarbones, face, legs, skull, and spine.

Milly Shapiro is an American actress and singer best known for her role asCharlie Graham in the horror movie Hereditary. She has a rare genetic condition called Cleidocranial dysplasia, which affects the formation of the teeth and other bones such as collarbones, face, legs, skull, and spine.

Ever seen the 2018 horror movie Hereditary? If you have, then you’d certainly remember Milly Shapiro, who portrayed the role of Charlie Graham in the movie. She also portrayed the character of Sally Brown in You’re a Good Man, Charlie Brown.The actress has no doubt become a growing force to reckon with in the showbiz arena. Aside from movies, Shapiro is also a talented singer and has launched a few music albums, including Live Out Loud – Live at 54 Below.

After receiving the prestigious Tony Honor in 2013 and a Grammy nomination in the same year, fans and followers have been interested in knowing more about Milly and her rare condition. This is because, from the first glance, it would be clear that Shapiro’s facial form and morphology differ from that of any “normal” child. This piece takes you a bit deeper into the life of the young actress and how much she’s accomplished despite her condition.

Who is Milly Shapiro and Where is She From?

Milly Shapiro was born Amelia Lee Shapiro in Tampa, Florida, the United States, on 16th July 2002, to parents, Eric and Michelle Shapiro. Her parents were local business owners, who raised Milly and her older sister, Abigail, in Tampa. Growing up, Milly Shapiro drew inspiration from her sister, who is a vocalist and actress. According to sources, she began singing at the age of 3 and started performing at 5.

From the onset, The Shapiros did the best they could to shield their daughter from public pressure due to her condition. As such, Milly Shapiro did not attend the regular school, but a Montessori school where she remained until she was 10. Montessori schools offer an education based on hands-on learning and self-directed activities guided by highly-trained teachers. It was designed by the Italian physician, Maria Montessori.

Here's What We Know About Milly Shapiro and Her Medical Condition · (1)

The Shapiros later moved to New York to offer Milly more opportunities in her career as an actress and singer. While she still attends school on the side, Shapiro is mostly known as an actress and singer. She trained in acting, singing, and dancing; in ballet, jazz, tap, and hip hop.

Milly Shapiro’s Fact Sheet

Here's What We Know About Milly Shapiro and Her Medical Condition · (2)

Details of Her Career and Achievements

Milly made her big break when she featured as Matilda Wormwood in Broadway’s version of Matilda (Matilda The Musical). She appeared alongside Oona Laurence, Bailey Ryon, and Sophia Gennusa. The musical was displayed at the Sam S. Shubert Theatre from March 8, 2013–January 19, 2014. However, hardly has the show reached its first year before the accolades began to roll in.

Milly Shapiro made history in 2013 after winning a Tony Honor with her Matilda costars Sophia Gennusa, Bailey Ryon, and Oona Laurence. The youngsters were honored for their Broadway debuts in Matilda.A feat that put their names on the map as the youngest recipients of the prestigious award in history. In the same year, Shapiro became a Grammy Award nominee for “Best Musical Theater Album” for Matilda‘s cast album.

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2016 was another incredible year for the young actress. That year, she starred as Sally Brown in the Broadway production titled You’re a Good Man, Charlie Brown at York Theatre. However, her popularity was only confined to the theatre space. She took a major step two years later, in 2018, when she made her first film appearance. Her role as Charlie Graham in Hereditary proved to be a groundbreaking gig for the Florida-born and pushed her further into the limelight.

What followed was her first television credit, in which she portrayed Emma Rebecca in the episode “We Need to Talk About Karen” of Splitting Up Together. But it doesn’t end there as Shapiro has also made it big on music as she is in acting. As a music artist, Milly Shapiro, alongside her triple-threat sister, Abigail, formed a tag team—Shapiro Sisters—and released the Live album from 54 Below concert in 2014. According to the records, the Shapiro Sisters were the first minors to have a cabaret at the 54 Below cabaret space in New York City.

As her fame and fortune increased, one major topic about Milly Shapiro has been her conspicuous not-normal appearance. This has been the subject of concern over the years. But it seems the teenager isn’t so worried about her condition like most of her fans are. And that is because fans know too little about it. Perhaps, the earlier fans knew that Shapiro isn’t hopeless after all, the better. Let’s tell you more about her medical issue.

What You Probably Didn’t Know About Milly Shapiro’s Medical Condition

Milly Shapiro struggles with a medical condition that puts her in the company of the likes of Stranger Things‘ star Gaten Matarazzo. Cleidocranial dysplasia, as it is called, is a birth condition that mostly affects the formation of the teeth and other bones. Children born with the condition are either missing or have underdeveloped clavicles, which then affect the structure of the face, teeth, and skull. The condition also results in weak pelvic bones, relatively low growth, and a prominent forehead.

Notwithstanding, the condition has not dampened Milly Shapiro’s dreams in any way. She has been more determined to move beyond her limitations, and ace her career to the encouragement of many who suffer from a similar condition. More so, the Shapiro Sisters continue to lend their voices against bullying targeted at children and teens with special needs.

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Here's What We Know About Milly Shapiro and Her Medical Condition · (2024)

FAQs

What is Milly Shapiro medical condition? ›

I would be remiss if I failed to mention that Milly Shapiro has a skeletal condition known as cleidocranial dysostosis, which can lead to collarbone and cranium deformities. (Stranger Things' Gaten Matarazzo has a similar condition, cleidocranial dysplasia.)

Which Shapiro was born with cleidocranial dysostosis along with her sister and mother? ›

Abigail Shapiro grew up with cleidocranial dysplasia, a rare bone disorder that affects about one in a million people. The genetic disease, which both Shapiro's mother and sister also have, can affect the development of certain bones and teeth. "I grew up having around 12 surgeries and constant orthodontia.

Are Abigail Shapiro and Milly Shapiro related? ›

Abigail Shapiro, American actress and sister of Milly Shapiro, also known as Abi Monterey.

How old is Charlie in Hereditary? ›

Plot. Miniature artist Annie Graham lives with her psychiatrist husband Steve, their 16-year-old son Peter, and their 13-year-old daughter Charlie. The family attends the funeral of Annie's secretive mother, Ellen, at which Annie is surprised at the number of mourners in attendance.

What is the life expectancy of someone with cleidocranial dysplasia? ›

About one in 1 million people have cleidocranial dysplasia. Males and females are affected equally. CCD has no impact on cognitive function or intellect. Though some people with cleidocranial dysplasia require multiple surgeries, they can live long, full lives.

What is cleidocranial dysplasia? ›

Cleidocranial dysplasia; Dento-osseous dysplasia; Marie-Sainton syndrome; CLCD; Dysplasia cleidocranial; Osteodental dysplasia. Cleidocranial dysostosis is a disorder involving the abnormal development of bones in the skull and collar (clavicle) area.

Can you be born without collarbones? ›

Individuals with cleidocranial dysplasia usually have underdeveloped or absent collarbones, also called clavicles ("cleido-" in the condition name refers to these bones).

Can you survive without a collarbone? ›

In most cases, cleidocranial dysplasia patients with underdeveloped or absent clavicles. They should not find significant obstacles in carrying out their daily activities. Some of the problems that come with this disorder are usually related to their physical image.

Are visible collarbones genetic? ›

Everyone has a collar bone. It is more visible when the person is lower than average weight. However people inherit their bone structure and as a result some collar bones are naturally more visible than others.

What happened to the little girl in Hereditary? ›

After she accidentally ingests peanuts and triggers a severe allergic reaction, Charlie goes into anaphylactic shock. As her brother, Peter (Alex Wolff), speeds down a dark country road to reach a hospital before she suffocates to death, Charlie clutches her throat and writhes violently in the backseat.

Who is the little sister in Hereditary? ›

Milly Shapiro is an American actress and singer. She starred in the 2018 horror film Hereditary and originated the role of Matilda Wormwood in the Broadway production of Matilda. She has also played Sally Brown in an Off-Broadway production of You're a Good Man, Charlie Brown.

Who is the daughter in Hereditary? ›

When her mentally ill mother passes away, Annie (Toni Collette), her husband (Gabriel Byrne), son (Alex Wolff), and daughter (Milly Shapiro) all mourn her loss. The family turn to different means to handle their grief, including Annie and her daughter both flirting with the supernatural.

Does Milly Shapiro have a facial deformity? ›

Milly Shapiro was born with a rare hereditary medical condition known as Cleidocranial Dysplasia. This is a congenital disability that is inherited from the parents. It affects the development of teeth and collar bones. Those diagnosed with this condition also have some little deformity on their faces.

What mental illness does Annie have in Hereditary? ›

The line of mental illness is passed down through the family (hence the title “Hereditary”): The grandmother suffered from dissociative identity disorder and dementia (while at the same time participating in “private rituals”), Annie's brother from schizophrenia (“my mother tried to put people in me”) and Annie from ...

What is the most disturbing scene in Hereditary? ›

Blood-Curdling Final Scene

Following the bombastic and utterly revolting climax of the film, the final scene of Hereditary is one of the most unnerving and genuinely scary the film has to offer, as it is simply an admission of defeat.

What is cleidocranial dysplasia in Stranger things? ›

Gaten Matarazzo III, who plays Dustin on the Netflix megahit, was born with cleidocranial dysplasia, or CCD, a rare disorder which primarily affects growth of teeth and collarbones.

What are the oral manifestations of cleidocranial dysplasia? ›

The oral manifestations include delayed exfoliation, delayed or failing eruption of the permanent dentition with multiple supernumerary teeth, protruding mandible, and mid-face retrusion. It is also known as Marie and Sainton's disease, mutational dystosis, or cleidocranial dysostosis.

Can you live without a clavicle? ›

In most cases, cleidocranial dysplasia patients with underdeveloped or absent clavicles. They should not find significant obstacles in carrying out their daily activities. Some of the problems that come with this disorder are usually related to their physical image.

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